Tag: Vesical Condition

  • Puchiko’s Overseas Trip with Restrictions: Australia, Part 2

    About a year ago, Puchiko traveled to Australia. I observed closely that even with dietary restrictions and health management challenges due to renal disease and vesical condition, as well as aerophagia (air swallowing), Puchiko—who lives with these limitations—could successfully manage an overseas trip without drastically changing her usual lifestyle, provided she planned carefully. I’ve written down her experience here.This is Tips about Overseas Trip with Restrictions. This is the continuation of the previous Part 1

    1. Day 2 with Overseas Trip with Restrictions

    Puchiko decided to take the scenic railway to Kuranda, a famous tourist spot she had also visited during her working holiday. She pre-booked the train, which made it slightly cheaper.

    When she arrived in Kuranda, Puchiko took a commemorative photo with a koala for the third time in her life. This time, she also took a picture with a python. A large number of Japanese tourists were there, but while everyone took photos with the koalas, she was the only one posing with the python. When I asked her what she thought, she said the python was cool, soft, and surprisingly pleasant to the touch. The python in the picture with her was a white and orange female. She was very cute and had a service-minded nature, giving a direct camera look.

    After touring Kuranda, Puchiko was about to have lunch, but she felt something was off. She had started feeling unwell around the time she boarded the train at Cairns Central Station. She ordered dal curry but after three bites, she suddenly felt nauseous and rushed to the restroom. Since I couldn’t follow her inside the restroom, I waited outside, but she told me later that she had vomited.

    By the time she boarded the return train, Puchiko was completely worn out. In fact, she had lost about 3 kg (6.6 lbs) of weight just before the trip. The malaise had already surfaced when she ate chanpon at Narita Airport. Although she was wearing a mask, she unfortunately slept with her mouth open on the train and ended up with a sore throat. It was regrettable, considering how carefully she managed her health on the plane. This incident made her decide that she must also carry nasal breathing strips for times when she might accidentally fall asleep while outside. When she returned home, completely exhausted, a cute visitor had arrived.

    2. Day 3 with Overseas Trip with Restrictions

    Despite being worn out, Puchiko had to wake up at 1:00 AM. She got ready and walked through the dark to the bus stop near the Botanical Garden to wait for her bus. This was because Puchiko had booked a hot air balloon ride early in the morning. Puchiko was the first passenger on the bus; all the subsequent passengers were Japanese tourists staying at hotels. She thought, “They must be rich.”

    Just when she was feeling unwell, she got motion sickness, and Puchiko vomited as soon as she arrived at the site. The plastic bag she had brought came in very handy that day.

    Once in the hot air balloon, she certainly enjoyed the view, but being quite petite (as her nickname ‘Puchiko’ implies), a couple that was quite large for Japanese people stood in front of her. When they took commemorative photos, she didn’t show up in the pictures. Naturally, I, Puchiko’s imaginary friend, didn’t appear either.

    After landing, there was time for a light meal, and though Puchiko didn’t eat, she was thirsty and accepted a drink. The only non-alcoholic option was orange juice, but what she was handed was actually champagne mixed with orange juice by mistake. The moment she drank it, she immediately felt sick and struggled repeatedly to hold back the vomit. On the bus ride back, she vomited quite a bit. However, learning from the previous day’s mistake, she kept her nasal breathing strip on and wore a mask during the hot air balloon ride and the bus ride, only removing them to vomit or drink water.

    When she got home, all Puchiko ate was one pack of strawberries. This could hardly be called self-catering. Her throat hurt even more from the vomiting, so she sucked on a medicinal candy-like lozenge she bought at COLES (supermarket) and spent 12 hours sleeping and resting.

    3. Day 4 with Overseas Trip with Restrictions

    After a good night’s sleep, Puchiko’s sore throat had disappeared. If she hadn’t had her tonsils removed, she might have had a high fever and blood in her urine right now.

    For breakfast, Puchiko ate homemade asazuke (lightly pickled veggies), white rice, and homemade miso soup. She decided to go sightseeing in the city that day. She walked past a nightclub she used to frequent on Friday nights during her working holiday days. It felt like a world completely separate from her current life, where she goes to sleep at 8 PM. She continued walking and looked out at the Esplanade.

    She went to a market that only opens on weekends and bought a melon. A half-cut melon was A$2 (¥200). In Japanese supermarkets, they usually cost ¥1,000 (A$10) to ¥2,000 (A$20).

    Next, Puchiko went to the casino. You can enter by showing your ID to the guard. Slots seem to be available during the day, but table games only start in the evening. During her working holiday, someone from her language school was strapped for cash and earned A$100 gambling at this casino.

    Puchiko returned home and cooked Dandan Noodles for lunch using brown rice noodles and oat milk. Rice flour allows for lower protein intake than wheat flour, and oat milk allows for lower protein intake than soy milk. Since some vesical condition patients seem to experience inflammation from soy products, this substitution is recommended for them. However, it’s hard to find additive-free oat milk in Japan. Irritants are also bad for vesical condition, so she added a small amount of shichimi chili pepper to make it only mildly spicy. She then indulged in the half-cut melon she had just bought at the market. Melons are high in potassium, so those with kidney disease requiring potassium restriction should refrain from such recklessness.

    Afterward, Puchiko strolled through the Botanical Garden near her Airbnb. However, as the clouds show, it became a squall, so she rushed back home. As I wrote in a previous article (【Mental Health】Ultimate Guide to Clinic Stress Relief and Finding Peace in Nature), she enjoys strolling through nature in various places because the plants and animals that inhabit them are different. After returning home, she made and ate Tomato Pasta using brown rice noodles, and then went to sleep.

    4. Day 5 with Overseas Trip with Restrictions

    Since she was returning home the next day, she needed to use up her ingredients. For breakfast, she cooked and ate zousui (rice porridge). She decided that this day would be for souvenir shopping. She would have preferred the Night Market, but as the name suggests, it only opens after 4 PM. Being located outside the city center, she felt it was too much hassle… plus, she gets sleepy in the evening. She decided to buy souvenirs at a souvenir shop in the city center starting in the morning.

    The benches in the city center are decorated with Aboriginal art. The trees in the city are full of bats! Tourists try to take photos, but beware of droppings, which are full of germs!

    Puchiko returned home and cooked and ate Tanmen (salt-based ramen with veg) using brown rice noodles. Afterward, she took a walk near the Airbnb to the area where her former homestay was located.

    Back then, Puchiko shortened her homestay period compared to what was planned. She grew disgusted because the host father would touch her feet with his bare feet during meals, told her a rotten tangerine was “just for her,” called her with a whistle like calling a dog, and the separated son (who was her age) brought his girlfriend over every night and made noise, plus the host mother was hysterical. She quickly moved to a share house.

    For dinner, Puchiko cooked a bean soup and ate it with white rice.

    6. Return Home

    Breakfast on the day of her return was the leftover bean soup from the previous night and white rice. After eating and getting ready, Puchiko checked out. She called an Uber and headed to the airport.

    The lasagna served as the in-flight meal… the salt content was outrageous. Puchiko had to wash it down with a massive amount of water. I wouldn’t recommend it to anyone with kidney disease! Since she skipped dinner, she probably managed to keep her daily salt intake within the limit.

    7. Message

    Overall, unexpected things happened in the first half of the trip, and it seems the flow was different from what Puchiko had anticipated. However, I observed that she was able to enjoy her overseas trip while skillfully controlling her dietary restrictions due to renal disease and vesical condition. When you are in the middle of treatment, it’s easy to think negatively; she was no exception. But I believe that by finding ways to enjoy life through careful planning, a brighter path can open up. While there is no need to force yourself to be positive, I learned from her that deciding on something you want to do and preparing for it and experiencing it can become energy for the soul.

    Though it’s still a ways off, Puchiko is planning a trip to Belgium in 4 months, and I intend to write about that next Overseas Trip with Restrictions.

  • Affection Nurtured by Illness? Puchiko’s Beloved Organs

    Affection Nurtured by Illness? Puchiko’s Beloved Organs

    ※This is Puchiko’s experience and is not a substitute for diagnosis or treatment.

    Puchiko is someone who has developed a special attachment to her own organs through her experience with illness. This is an illustration of her organs that Puchiko drew. Since she gave me permission to post it on the blog, I’m sharing it with you all today. However, since it is her original artwork, I have applied some minor edits to prevent unauthorized reproduction.

    Puchiko's drawings og cute organs.

    Every organ has its own personality and is very cute. My personal favorite among them is the “Bladder.” She is living with a bad vesical condition, which is different from typical bladder caused by a bacterial infection. It’s a mysterious disease that causes chronic pain and discomfort in the bladder, with main symptoms including bladder pain, frequent urination, and the sensation of incomplete emptying. Therefore, in Puchiko’s illustration, her bladder is depicted as very sensitive and tearful.

    Furthermore, because this condition is adjacent to her Uterus, which has uterine fibroids, they influence each other. The Uterus always seems to be irritated with the Bladder. This is because, even though Puchiko needed to have a uterine examination, the procedure had the potential to exacerbate her bladder pain. Consequently, she was unable to have the examination for about three years until very recently.

    It’s understandable that the Uterus would be angry at the Bladder, saying, “Because of you, I can’t even get a cancer screening!” Though, the Uterus itself is also pressing on the Bladder due to all the fibroids it has.

    But when she finally received permission from the urologist to proceed with the uterine examination the other day, both the Bladder and the Uterus reportedly rejoiced together.

    Puchiko talks with her doctor about her vesical condition is affecting the uterine examination.
    Puchiko talks with her doctor about her vesical condition is affecting the uterine examination.
    A comic about consulting a urologist regarding the inability to perform a uterine examination due to the effects of vesical condition.

    The reason I know her physical situation in such detail is that Puchiko has drawn this whole series of events in a manga. With her permission, I’m sharing this with the readers as well. I believe it will make the relationship between the organs easier to visualize.

    (Note: I received permission from Puchiko to rewrite the speech bubbles in English.)

    Conclusion:

    Puchiko regularly posts these “organ dramas” unfolding within her own body on Instagram in the form of diary entries and comics. Watching Puchiko’s posts, I can’t help but feel a sense of familiarity and affection for them, even though they aren’t my own organs.